Comments on: 4 Weeks Post-Treatment http://moonhaven.com.au/ericsstory/2007/08/14/4-weeks-post-treatment/ From diagnosis and treatment to living with carcinoid cancer Tue, 06 Jan 2009 19:29:35 +0000 http://wordpress.org/?v=2.7 hourly 1 By: leonie http://moonhaven.com.au/ericsstory/2007/08/14/4-weeks-post-treatment/comment-page-1/#comment-23 leonie Thu, 30 Aug 2007 13:50:10 +0000 http://moonhaven.com.au/ericsstory/?p=12#comment-23 Hi Bill, Good points you have raised and ones we have also talked over with the oncologist. The exclusion period for the Sandostatin LAR is 6 weeks. Seeing that there is something like 15 weeks between the first treatment and the second Eric has time to be covered by and receive the benefits of the sandostatin. This is important for every month without Sandostatin is a month where the excessive hormones (especially the serotonin) can and does affect the heart and other organs. As for the Capcetabine side effects... this is a 1 in 1000 event... and as far as we know Eric is the first! It is important that this is recorded in the literature so that if it does occur again the doctors are aware of it etc. ERic will keep on updating as and ehen there is something to say. For the moment everything is fine and we are just looking forward to the imaging and next round late October. Hi Bill,
Good points you have raised and ones we have also talked over with the oncologist.

The exclusion period for the Sandostatin LAR is 6 weeks. Seeing that there is something like 15 weeks between the first treatment and the second Eric has time to be covered by and receive the benefits of the sandostatin.
This is important for every month without Sandostatin is a month where the excessive hormones (especially the serotonin) can and does affect the heart and other organs.

As for the Capcetabine side effects… this is a 1 in 1000 event… and as far as we know Eric is the first! It is important that this is recorded in the literature so that if it does occur again the doctors are aware of it etc.

ERic will keep on updating as and ehen there is something to say. For the moment everything is fine and we are just looking forward to the imaging and next round late October.

]]> By: Bill Claxton http://moonhaven.com.au/ericsstory/2007/08/14/4-weeks-post-treatment/comment-page-1/#comment-18 Bill Claxton Tue, 28 Aug 2007 01:09:14 +0000 http://moonhaven.com.au/ericsstory/?p=12#comment-18 It would be interesting to know if other patients in the trial have dropped the chemo bit. Also intrigued that your oncologist is keeping you on LAR. I'd have thought that the trial rules would preclude that, so as not to interfere with takeup of the Lu-177 tagged Octreotide. Very glad to hear that you're physically active and feeling better too. Thanks for sharing this update. It would be interesting to know if other patients in the trial have dropped the chemo bit. Also intrigued that your oncologist is keeping you on LAR. I’d have thought that the trial rules would preclude that, so as not to interfere with takeup of the Lu-177 tagged Octreotide.

Very glad to hear that you’re physically active and feeling better too. Thanks for sharing this update.

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